Sbs Nepali -

Canberra-based Nepali mother and registered nurse Nirjala Sigdel shares her personal journey after her two-year-old son, Liam, was diagnosed with Duchenne muscular dystrophy (DMD), a rare and progressive genetic disorder that causes muscle degeneration. She describes the diagnosis as a moment when her “world turned upside down.” Sigdel highlights the emotional and practical challenges of caring for a child with a life-limiting condition, while also advocating for access to emerging treatments, including gene therapy, within Australia. Disclaimer: Listener discretion is advised, as the discussion includes references to suicide that may be distressing for some audiences. - क्यान्बरा निवासी निर्जला सिग्देल आफ्नो छोरा लिएममा निकै दुर्लभ मानिने जेनेटिक अवस्था डुशेन मस्कुलर डिस्ट्रोफी (डीएनडी) रहेको थाहा पाउँदा संसारै उल्टिए जस्तो लागेको बताउँछिन्। यो एक गम्भीर र क्रमशः बढ्दै जाने जेनेटिक डिसअर्डर वा जिनमा रहेको एक असामान्य अवस्था हो र यो अवस्था आफ्नो एक्लो सन्तान हाल दुई वर्षका लिएमलाई पनि रहेको थाहा पाउँदाको अनुभ